I am a Mom who is taking care of a 3 year old son who has a Chronic Disease called Pulmonary Arterial Hypertension, he has a ASD (Hole in his heart) and Sleep Apnea. This is the journey of a Mother with all the craziness in between
After Heart Cath
Saturday, February 19, 2011
The Rollercoaster
We are now in waiting as Adam surgery has been bumped from the 22nd of February until March 16th. It means another month of not being able to fully relax knowing that it is still coming so soon. Our baby is still going to be put under, still going to have his chest cracked open, heart stopped and worked on. Instead of the freight train ahead that we had at first mentally set ourselves up for. Originally we had a week and a half in which we had finally got in the mindset, now we have a month so we need to slow down a bit and get everything in order for that day that will forever change our lives. Little did we know that when we decided to have Adam we brought someone into this world that has a bigger purpose in his little life than most of us ever have in our entire lives. All the studies he's a part of, every new medication and Dr's talked to, every surgery, procedure and even his recovery could help another family down the road, or many kids. This will also pave the way for a child who has literally been to the brink, been through hell, come out the other end and can then choose to do great things for this world. Adam's purpose and life on this planet could help those all around the World which is the one solice that we are keeping in our hearts. As scary as it is for us, as awful as this is for Adam positive thoughts and knowing that there is a greater purpose will ensure that everything is ok. Now all we need to do is wait, keep moving forward and come together and laugh as a family until that fateful day.
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