Life....

Well it sure has been an interesting period of time over the past little while.  Between the appointments, cancelled surgeries, Adam having croupe and then his tonsils finally coming out there has been a lot of ups a downs.  Adam's croupe was a bad bout and he needed treatment for it which pushed his tonsilectomy back.  It has finally happened and he had surgery on the 25th.  He spent one night in ICU doing well except for having to wake him every few hours for medications. We spent another day in Cardiology where Adam could see the LRT so he was excited to see the trains and then we came home.  36 hours later we were rushing back due to Adam bleeding and bleeding a lot.  One of his clots let go way too early and he was bleeding into his belly.  Luckily I had him laughing otherwise I wouldn't have known until the dreaded time of him puking blood, thankfully that was saved for the ER though still terrifying.  It was sooooo scary to see him like that, going pale, going lethargic and the Dr's not liking his pulse.  All I wanted to do was help my son and I couldn't do anything but hand him back over to surgeons and hope for the best.  Luckily Aaron and I acted fast and got Adam there right away because they were able to help Adam and not have to give him a blood transfusion though he was close.  It was literally the worst case scenario that happened.  The shining light is that Adam is better and is soooo amazing through all the hard and scary times.  He is still recovering and after what happened it's been hard to relax until we know he is better 100%.  I am still having nightmares about the ER and seeing him covered in blood, so it's been hard to sleep.  I feel so much love for my son and I am so happy that he is alright in which it also humbles me because some of the other children in ICU may not be the case.  We are very fortunate to have a child who is 2 and is able to function well at home.  I also learned to let go a bit as Aaron did the night shifts at the hospital to let me go home and sleep so we both have a new perspective as to what each other experiences.  I will now be able to go home when the big surgery comes which is going to do me some good.  For the next while Adam gets to be a kid.  With everything that has happened Adam's heart is still functioning very well thus no rush for surgery, therefore surgery will not be most likely the end of June.  We'll make sure to get in as many good times before then including hopefully a camping trip with Children's Heart Society.  As scary as things are we are finding great support networks and have been lucky to have such great friends and for that I thank you!