Overwhelmed

OK so this is my first blog....
There is so much going on in my life that it is really kind of crazy.  I have an amazing 2 year old son who has been stricken with Idiopathic Pulmonary Arterial Hypertension as well as has a very large Atrial Septal Defect which isn't uncommon with his disease.  Having it as large as it is and having the pressures he has at his age on the other hand isn't common.  It's really hard knowing that even though Adam looks so healthy on the outside he's a time bomb on the inside.  I am so thankful we have found it now as apposed to even another year down the road as it is very agressive in children.  I am also thankful that there are so many options now as apposed to 20 years ago.  20 years ago he'd be lucky to live to the age of 5 as the only option was transplantation.... so scary to think of.  We still don't know the cause so there are still a lot of questions to be answered.  He takes medication 4 times a day and it seems to be helping, which is music to my ears!!  There are other medical options down the road too and hopefully one day they will have a cure in his lifetime.  Instead of drowing in my sorrows I have decided to use my pain to helping others in need.  When I sat in Adam's hospital room after his catheterization I realized how many Moms have put their lives on hold to take care of their child.  I know the Dads are hurting too and are working even harder so the Moms can be there, but they get a chance to escape for a bit.  The Moms are there watching nervously, learning all about medications, keeping the children in bed and entertained all the while not worrying about themselves.  After speaking with one Mom it was amazing the strength that comes out of both the child and Mother when they are so connected.  I looked for a website to be able to connect with other Moms who have sick children and I came up empty handed and that is when the thought came across my mind that other Moms may be doing the same thing.  That's when I decided to create and launch my own site to try and help all other Moms who need the support as well.  I know the Dads may or may not be trying, ultimately in the end though it's the Moms who tend to be alone with the child with the disease and it makes it hard.  If you need support like I do then go to http://www.momscare4moms.com/ and become a forum member.  There is already another Moms on their who is having a very rough journey and the site has been helping her, so we are there so you are not alone.